Tag Archives: patient participation

DTC Genomics: Opportunity Lost?

Once I warmed up to the idea of startup companies offering to sequence the DNA of anyone capable of ordering from Amazon.com, I began to look forward to what might come of this nascent industry. Enabling individuals to have their … Continue reading






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Time to Rethink Cancer Therapy?

In an earlier post, I wondered a bit about the ultimately causes of cancer.  For the last several decades cancer has been labeled as a genetic disease, an idea which we have chased with great fervor.  Yet, It feels to … Continue reading






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DTC Genomic Testing—What’s it good for anyways?

What is the fuss over DTC genomic/genetic testing all about anyways?  DNA is just a sequence of letters, isn’t it?  Lots of people are experiencing angst over the fact that these upstart companies would have the nerve to sequence part … Continue reading






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DTC Genomic Testing: a Window on Society?

I continue to believe that the discussion surrounding the Direct to Consumer (i.e. DTC) genomic testing is basically a healthy thing (pardon the pun).  It seems to me to be a window into the larger conversation about the role of … Continue reading






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A Couple of Glimpses at the Genomic Future

There were a couple of stories in the news in the last few days regarding genomic/genetic testing that hit on recent controversies surround said testing. In earlier posts, such as this one, I commented on the now world-wide discussion about … Continue reading






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ESHG Chimes in on DTC Genetic Testing

The European Society of Human Genetics (ESHG) published a policy statement in the European Journal of Human Genetics on the Society’s position with respect to Direct to Consumer Genetic Testing services .  In this position paper the ESHG discusses its … Continue reading






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Genomic-level Testing: the Debate Continues

This is an interesting debate unfolding here: what to do about Direct To Consumer (DTC) genetic/genomic testing.  The two sides seem to be It’s my DNA and I want to know what’s there You may not get correct information on … Continue reading






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More on the Future of Medicine

Support for Participation as a key component of the improvement of health care going forward is found in this article from the Harvard Business Review.  Important developments cited include behavioral economics, patient portals,  and checklists (for physicians, but why not … Continue reading






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